South Brunswick Family Needs Help for Life Changing Home Improvements
Ray Fantel, 4, of Kendall Park, cannot sit up without assistance and has never crawled or walked due to a degenerative neuromuscular disease.
In many ways, Ray Fantel is a normal 4-year-old boy. He wants to run, jump and play with his older brother. In another way, Ray is very special. He has already lived twice as long as he was expected to. Ray was diagnosed with spinal muscular atrophy type 1 when he was 5-months-old. SMA is an incurable, terminal disease and the most frequent genetic cause of death in infants. The average life expectancy of a child with SMA is 2 years. “We were crushed,” said Ray’s mother Marcy Fantel of the diagnosis, “We vowed to do everything possible to give him the best chance and make sure he enjoyed life no matter what the length of time he has.” Today at 4-years-old, Ray has a beautiful smile and speaks softly. Because SMA is a degenerative …
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