Time seems to fly by so fast and the memories of my baby are as vivid as if they occurred a second ago. So many children suffering from cancer, so many babies crying in the night, so little being done to ease their pain; a legacy of immoral proportions.
Friday, October 16, 2009 10:04 PM, EDT
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Brady is sleeping and after his second ration of chemo appears to be headed in the right direction. His temperature has been under 100 for more than 24 hours and this is the first full day his temp is back to somewhat normal in over 2 weeks. I can only hope this continues for the next 4 days so we can go home some time next week; maybe Wednesday or Thursday.
Some of the more detail test results are starting to come in and so far everything is still pointing to Acute Lymphoblastic Leukemia (ALL). Let’s all hope this continues!
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Sherrie is home tonight and I must say she is just a terrific Mom! She has been at Brady’s side for just about every minute the last 11 days. Her attention to detail is amazing and Brady is a lucky little boy to have such a wonderful Mom. I think she gets this from her Mom (Janice) who has spent so many hours at Brady’s side giving him the love and attention only a Grandma can do.
Well, the 2nd half of the Rutgers Pitt game is about to begin and I’m going to try to watch it before turning in for the night. By the way; whoever designed
Saturday, October 17, 2009 6:05 AM, EDT
I have been up since 3:30 can’t sleep with all the people coming and going in and out of Brady’s room. Well it's Saturday morning and I'm sitting in my son Brady's hospital room after a lovely night of sleep on the rack. This is the time of day I love the most; Brady is sleeping away on his stomach with his butt stuck up in the air, it’s just adorable to see. It’s been challenging for him to get any sleep; the poor kid would fall asleep and roll over and the damn pumps he's hooked up to start beeping and beeping. What a freak’n nightmare.
Anyway, as I was saying it's Saturday and my son is on the mend! I am ecstatic with joy. Sherrie and I really thought we were going to lose our baby. He was and I guess still is so, so sick. It’s very difficult for me to accept the fact that Brady my Baby Bear has cancer. I have been asked several times if I am going to cut Brady’s hair before it starts to fall out and my answer is a flat out NO! I will not give this shitty disease one inch of assistance; if it wants my baby’s hair it’s going to have to take all by itself. I hate the thought of him losing his beautiful blond curls; it just breaks my heart.
You know, as much as I bitch about this hospital I must say the nurses, doctors, and support staff is just outstanding. Last night the nurse (Isabell) tells me not to get up during the night that she will change Brady’s diaper and handle “things”. Nice lady and a very good nurse.
The Bear is starting to stir; I guess he’s wants to eat, so until next time keep Brady in your thoughts and prayers…
this room must be a sadist masochist! The bed is about 24” wide and 4’ long with a 2” mattress. The sinks do not have facets and hot water does not come out of them if you can get them to work. However, believe it or not the food is not too bad and the staff is just about as good as anyone could ever expect. I just want to go home with my son and never come back here again!!!
Finally, it is impossible to thank everyone for the overwhelming love and support Brady (Sherrie & me) have received. It is truly astonishing and we will always be eternally grateful.
